Statistics on Rare Diseases Fund Application and Awareness of Donor Options

NOTICE PAPER NO. 2394
NOTICE OF QUESTION FOR WRITTEN ANSWER
FOR THE SITTING OF PARLIAMENT ON 22 NOVEMBER 2023

Name and Constituency of Member of Parliament
Mr Ong Hua Han
Nominated MP

Question No. 5206

To ask the Minister for Health (a) how many applications has the Rare Diseases Fund (RDF) received since November 2022; (b) how many RDF applications in this period sought funding for non-listed medications; (c) how many RDF applications in this period have been successful; and (d) whether annual reports on the RDF highlighting the number of applications received and the financial status of the fund can be published.

NOTICE PAPER NO. 2400
NOTICE OF QUESTION FOR WRITTEN ANSWER
FOR THE SITTING OF PARLIAMENT ON 22 NOVEMBER 2023

Name and Constituency of Member of Parliament
Mr Ong Hua Han
Nominated MP

Question No. 5225

To ask the Minister for Health (a) how are donors to the Rare Diseases Fund (RDF) being informed that they have the option of specifying that the principal sum of their donations can be drawn down for Cell, Tissue, and Gene Therapy Products (CTGTPs); and (b) whether these donors can be informed on what constitutes the expendable component of the RDF as stated in the RDF donation form.

Answer

These questions have been addressed in my reply to Question No. 10 for oral answer on the Order Paper for 22 November 2023.