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Parliamentary QA

Singaporeans Diagnosed with Spinal Muscular Atrophy and Cost of Treatment

22 March 2023

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NOTICE PAPER NO. 1804
NOTICE OF QUESTION FOR WRITTEN ANSWER
FOR THE SITTING OF PARLIAMENT ON 22 MARCH 2023

Name and Constituency of Member of Parliament
Mr Chua Kheng Wee Louis
MP for Sengkang GRC

Question No. 2829

To ask the Minister for Health (a) what is the number of Singaporeans currently diagnosed with Spinal Muscular Atrophy (SMA); (b) what are the currently approved treatment options for SMA; and (c) what is the average cost of such treatments before and after any applicable Government subsidies.

Answer

1      There are currently about 40 to 50 persons in Singapore diagnosed with Spinal Muscular Atrophy (SMA). Risdiplam is the only treatment option registered with and approved by HSA. It costs around $375,000 a year in our public healthcare institutions.